PAIGE’S PERSONAL STORY

My daughter Paige is 16 at age 13 she had a thoracic arachnoid cyst on her spine went from t1 to t 12 after surgery was paralyzed for awhile at age,15 had to have rods fused in her spine to keep her,from falling over which they say are causeing stomach issues now. They say functional abdominal pain maybe gastroparesis they said,why emptied her stomach of food and did botox injections she cannot eat much feels sick and stomach pain. Does not feel hungry she is down to 94 lbs. They said no more test to run and want her to go to a pain management one time she will have lots of diarhea then constipation. we are so frustrated any suggestions for us or anyone to talk to. Any help is appreciated

Share this page
Share on facebook
Share on twitter
Share on linkedin
Share on email
Share on print
Want to share your story?

Share your experience of living with a digestive disorder – it can be therapeutic for you as well as others who suffer.

Skip to content